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Wednesday, December 07, 2022

Chronic lymphocytic leukemia: the impact of patient’s emotional well-being on treatment

lymphocytic leukemia Chronic (LLC) It occurs most often in adults and marks World Day on 1 September. So alma association took the opportunity to disseminate the results of a survey titled ‘Report on Emotional Impact’, which seeks to raise awareness of patients’ need for additional support and the importance of taking into account quality of life as an important aspect Is. remedy. The survey included the perspective of 313 participants from across the United States, including patients (111), relatives who worked as caregivers (100) and oncomatologists (102).

Fernando PiotrovskyThe patient and the ALMA’s executive director clarified that, despite the fact that no Argentines participated in the survey, they thought it appropriate to disseminate it “because the emotions that generate such illnesses are universal and practical among sensitivities.” There is no difference in the form a person experiences when faced with a diagnosis of leukemia in Argentina, the United States, Europe or anywhere in the world. We know a lot about the body and bone marrow in a person with leukemia, but we do not discuss enough about the mental and emotional reality of patients, so this survey is valuable.”

CLL is a slow growing blood cancer in which bone marrow Produces large numbers of lymphocytes, a type of white blood cell1. It progresses more slowly than other types of leukemia, and a significant proportion of patients do not develop symptoms for many years; This makes it frequent that the diagnosis is reached accidentally in routine screening. This slow progression means that, in most patients diagnosed, they begin with an approach called ‘watchful waiting’, through which disease activity is often monitored, but no medical indication is given at this time. Is.

respondents told experience a wide range of emotions From anger and bitterness to optimism and gratitude. Those newly diagnosed CLL patients and/or those whose medical professionals indicated watchful waiting felt hopeful (41%) and optimistic (36%) and expressed hope for future treatment success and long-term prognosis. Others indicated that they were feeling anxious, not being able to know when they would need treatment again and not knowing what was going on next, which could increase the diversity and complexity of the emotions they experienced. exposes. Once patients received treatment for the first time, many (42%) reported feeling positive and reassured, satisfied, or reassured that the drug was working.

“These results reflect the emotional roller coaster that a cancer experiences in the face. Many times, conflicting emotions are experienced in the same day. The important thing as a patient is to know yourself, to recognize that. Begin with what situations change a lot in your own state of mind to learn to manage our emotions”, he expressed to ALMA. “Ideally, patients should Treat an illness like CLL with emotional support, The results of this survey reflect the need to generate and strengthen bonds of healthy trust where dialogue between the patient and their health professional can take place. We should promote space to talk about the stage of the disease the patient is in, the factors that affect the prognosis of outcomes, the therapeutic objectives that we pursue with the various treatment options available; But more importantly, we need to be able to hear how it resonates with the patient and thus be able to understand their expectations, limit suffering and uncertainty, and agree on next steps.” Explained Dr. Rosario Custidiano, a hematologist in Hematology and the Alexander Fleming Institute’s Hematopoietic Transplant Service.

Importance of patient’s emotional well-being according to doctors

9 out of 10 treating physicians surveyed argued that a patient’s emotional well-being affects their adherence to treatment and their ability to cope with it, but also how their body responds to treatment.

Chronic Lymphocytic Leukemia: For 9 Out Of 10 Specialists, Patient'S Emotional Well-Being Affects Their Treatment

Chronic lymphocytic leukemia: For 9 out of 10 specialists, patient’s emotional well-being affects their treatment

Health professionals believe that broad view A person diagnosed with CLL differs from other types of cancer in that they practically have to treat this leukemia as a chronic disease, where therapeutic adherence and quality of life are important aspects to determine the treatment of choice. Huh.

Dr. Custidiano explained that, in this framework, “when disease is active treatment is required. Today we have what we call “targeted therapy” to differentiate it from conventional chemotherapy. These newer drugs may also be given in combination for 1 or 2 years, leading to intense reactions that persist for more than 4 years. This disease-free time is also treatment-free time, where the likelihood of feeling ill or experiencing treatment-related adverse events is minimal. Of course, they will have to continue with the medical check-up, but now with a completely different freedom to resume their lives.”

It is very important that in the context of parallel medical progress Diagnostic methods and new treatmentsThe genuine concern that emerges for the most human aspects and quality of life involving not only the patient but all those involved in the management of oncological and oncohetological diseases.

the growing role of psychopathology or Research like this presented today helps give quality of life the space it deserves, because it doesn’t matter how you go through an oncological disease: with or without emotional support, your doctor. With or without good communication, and with the need to receive long-term treatment or with the possibility of time-limited treatments that favor adherence, decompress the health system, giving the patient more freedom of predictability and really change their quality of life”, they valued the soul.

Bureaucratic constraints affecting quality of life

Bureaucratic barriers to drug delivery or even approval of a specific study requested by the doctor quality of life is affected,

It is too tiring to submit some documents over and over again so they always give you a different excuseWhen playing with the health of a person with leukemia,

Bureaucratic Barriers To Drug Delivery Or Approval Of A Specific Study Requested By A Doctor Also Affect Quality Of Life.

Bureaucratic barriers to drug delivery or approval of a specific study requested by a doctor also affect quality of life.

In this sense, ALMA works hard to manage timely access to patients what their doctors tell them, It is convinced that there is no point in developing better and better innovations for science, if later those who need them cannot reach them.

Above all, they emphasize that advance is so important to the management of some leukemia, Achieving complete remission with long-term undetected minimal residual disease, even after completing medical treatments. This is the case of chronic lymphocytic leukemia.

Chronic lymphocytic leukemia: the role of caregivers

Another perspective analyzed in the survey is also caregivers, understanding by them not the nursing or support staff, but the family member who accompanies them; Sometimes it is their partner, one of their children or the father or mother, depending on their age. In the best cases, it’s work evenly distributed among many.

Of the 100 carers who participated in the surveyThe majority (81%) liked going with someone with an LLC and felt it was their responsibility to do so, although almost three out of four said it was more difficult than expected.

Fernando Piotrovsky Recognize that “this can be an exhausting role, in which, on the one hand, a sense of love and responsibility towards that person interferes, but also fear, uncertainty and perhaps the pain of seeing them suffer. Then, they begin tend to weigh the inevitable resignation it takes to give unconditional support: reduce the workload, change routines at home (sometimes visiting a loved one or bringing them home), limiting social life, Canceling vacations, neglecting rest and food. The uncomfortable reality about this new one also breeds guilt and we feel bad about it.”

“Carers should not underestimate the effect this whole situation is having on their emotions and their bodies, as it will inevitably result if they fail. Manage your energy and stress properly along the way, One does not come out of this state in the same way as he started; It can be strong and full of learning, but it’s a big challenge to make sure it doesn’t overwhelm us”, he completed from ALMA.

Cll Primarily Affects Adults, With An Average Age Of 65 To 70 Years, And Is More Common In Men Than Women.

CLL primarily affects adults, with an average age of 65 to 70 years, and is more common in men than women.

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