Trek to raise money, awareness for cystic fibrosis
Bernie Martin is running for Hope on May 28.
So are Ryan Parks, Ben Strasser, Jim Haldish and Thor Helsing, Abby-Layne Ball, Mary Palka, Rachel LeVack, Trish Coverdale and Lisa Lee.
They plan to run from Brentford to Port Dover and return in 24 hours in support of Hope Janians, a seven-year-old Brantford girl living with cystic fibrosis. Hope is Ball’s daughter and Palka’s niece.
“We’ve been training for this, but it’s a tough challenge,” said Bernie Martin of All Day Breakfast – Creative Agency. “We are very grateful for the support of friends and family who have donated, have been with us for hours on training and for the moral support they have given along the way.”
Walkers will begin their journey at 6 a.m. from the All Day Breakfast Studio in West Brent and make their way to Port Dover. Their route includes the trail system through Brentford, Brent and Norfolk counties.
They will complete their trek by 6 am on 29th May.
“It is our mission, as local business owners, to give back and build a strong community around us,” said Haldish of Altitude Coffee Roasters. “We do many different fund-raising events throughout the year but CF is a special event for us because it directly affects a dear friend’s child of ours.”
May is Cystic Fibrosis Awareness Month, and Ball is grateful for the support her daughter has received from the group and the wider community.
“This is the second year for Walk and it’s really nice to have friends and people in the local business community to step up to help people with CF,” Ball said.
Last year’s outing raised $8,000, and Ball expects this year’s effort, along with the wine draw, to raise $12,000 to $13,000 for cystic fibrosis research.
In addition to raising funds for Cystic Fibrosis Canada, this walk aims to raise awareness of the disease.
Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and adults. There is no cure, but funding for research and unprecedented drugs has helped to dramatically improve the lives of people with CF.
In 1950, the median survival age for those born with CF was only two years. Turns 50 years old today.
To support the walk and learn more about the wine draw, visit www.roadtothecure.ca.