The National Pulmonary Hypertension Association (ANHP), founded in 2004 by Irene Delgado (current board member) diagnosed with pulmonary hypertension (PH) works for Improve the quality of life of people affected by pulmonary hypertension.
This club was founded because it was necessary inform, help and support Both the people affected and their families. The basic goals of our association are to spread the disease, support and Help for affected people how important it is to make the disease known and normalize it in the development of daily life, without forgetting to support and invest in research to the extent we can to find a future cure.
It is crucial to detect these early, as this can minimize and delay the consequences of the disease and improve quality of life.
The pulmonary hypertension It is a disease that is difficult to diagnose (diagnosis delay is approximately 3-5 years) and is called “diagnostic”. Rare or minority “That means it affects fewer than five people per 10,000 inhabitants. At the moment There is no cure and we can name it chronic disease However, thanks to existing treatments, these are not suitable for everyone and are aggressive and sometimes even very painful. Without treatment there is one Life expectancy of 2.8 years. If treatments don’t work, transplant is the only option two-lung and the Block cockroaches (heart and lungs). It is crucial to detect these early, as this can minimize and delay the consequences of the disease and improve quality of life. It is often confused with asthma or other things Respiratory diseases.
Currently there is no cure and we can speak of a chronic disease thanks to the treatments that exist, although they are not suitable for everyone and are aggressive and sometimes even very painful.
PH is a pathology that can do that affect both children and adults in both sexes, but occurs more frequently Women between 30 and 50 years old. This disease is defined by excess increased pressure in the pulmonary arteries that transport blood from the heart to the lungs. The result is an overload of the heart, which suffers from the consequences of these lung changes and in many cases leads to heart failure.
This disease is defined by an excessive increase in pressure in the pulmonary arteries that carry blood from the heart to the lungs.
The most common symptom is breathing disorder, Dyspnea O shortness of breath, which occurs acutely and with the slightest exertion. But it’s also worth mentioning other symptoms B. Cyanosis, which causes a bluish discoloration of the nails and lips due to lack of oxygen, asthenia (fatigue on exertion, weakness, lack of vitality), edema and swelling in the ankles, chest pain (acute and suffocating feeling of oppression), malaise, dizziness when walking, Climbing stairs or with moderate exertion, syncope, loss of consciousness, or shortness of breath, including when washing hair, putting on socks, bending over to pick something up, or making the bed.
PH is a pathology that can affect both children and adults of both sexes, but is more common in women between 30 and 50 years old.
Therefore, it is clearly a disease affects the quality of life of the people who suffer from it and for this reason the ANHP makes it available to those people who need it multidisciplinary team that responds to the demands of those affected in the search for this improvement.
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- Department for psychology: With the help of our psychologist we help and support. We try to support people after the difficult moment of diagnosis and accompany them in the necessary phases of coping with the illness. Make them feel like they are not alone in the face of the illness and try to teach them how to normalize it. Support is also offered to family members and caregivers who bear the emotional burden of the illness.
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- Department for Social work: This service and continuous cooperation with the board ensure individual social support. Existing public and/or private resources that may be in demand by those affected are also offered.
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- Legal advice: People affected by these diseases have many problems due to unfair disability assessments and with the social security courts because it is an outwardly invisible disease. This service provides information, support and expert advice on legal material to achieve appropriate assessments.
The search for improvement Quality of life is complex and relates to many aspects, not just the clinical ones. It is important to appreciate the mental, psychological, communal, social, relational aspects, etc. in order to work appropriately and always be in search of the stability of the person affected.
