The Institute for Research and Social Development of Rare Diseases (INDEPF) and New Medical Economics have jointly debated “The health and present of Castilla-La Mancha: a look at rare diseases”. The event took place today at 10:00 am in the INDEPF hall, which is located at its headquarters in the Casa de las Asociacións de Campo de Criptana.
The debate had an excellent attendance of health representatives of the main political parties that are competing in the election on 28 May in Castilla-La Mancha. Among them, Juanjo García, health and consumption coordinator of the Popular Party of Castilla-La Mancha, José Antonio Contreras, health spokesman for the Spanish Socialist Workers’ Party of Castilla-La Mancha, and Esther Trujillo, candidate for the Cortes of Ciudad Real and Izquierda. United, who shared their views and proposals on health matters.
Under the guidance of José María Martínez, Executive President of the New Medical Economics, a space was created for constructive dialogue addressing challenges and attitudes to health in the community of Castilla-La Mancha, with a special emphasis on rare diseases I went.
Participants highlighted the “importance of improving care and support for patients with rare diseases”, acknowledging the burden these conditions represent for the health system. During the debate, concrete proposals were presented to strengthen early diagnosis, access to innovative treatments and the implementation of comprehensive support policies.
The event was widely attended by health professionals, researchers, representatives of patient organizations and other relevant people in the health sector. In this way, diversity of viewpoints has enriched the debate and fostered a rich exchange of ideas.
The Institute for the Development and Promotion of Health and New Medical Economics is satisfied with the result of this important debate, which has clarified the importance of rare diseases and laid the foundation for future actions and collaborations for the benefit of citizens from Castile-La. Mancha.