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Sunday, December 04, 2022

Neurofibromatosis: the disease that is confused with monkeypox

The Association of People with Neurofibromatosis (AANF) has called on the professional community, media and administration to explain the difference between this pathology and monkeypox, as some patients were “reprimanded in the street” before the confusion between the skin lesions “Both diseases.

Neurofibromatosis is a chronic, degenerative, incurable genetic disease that can be disabling, caused by alterations of chromosomes 17 and 22 that cause uncontrolled growth. tumor almost all over the body. The physical, mental, sensory and social complications faced by those affected are numerous and their development is highly variable, ranging from physical deformities to cancer and even death.

A large proportion of patients have cutaneous neurofibromas, a type of benign tumor with the appearance of “lumps” that can appear in different parts of the body; Be in number, from a few tens to hundreds, and in various sizes. They are traits with a significant aesthetic effect that can lead to poor self-image, low self-esteem, rejection and social isolation.

“Many patients with neurofibromatosis have been reprimanded in the street, so we appeal to societal awareness and sensitivity not to help us increase the stigma that they already suffer,” said AANF President Agustin Campos.

“The lesions between the two pathologies are markedly different,” says Dr. Hector Salvador, a pediatrician at Sant Joan de Deu Hospital. “In smallpox it is about acute lesions (they appear in days) and vesiculopustular (like chicken pox). There may be some pustular lesions in the very early stages and perhaps a suspicion for a person on the street , “they tell.

“On the other hand, neurofibromas are lesions with very slow growth (years). In the initial stage they are flat, carious and over time they gradually develop into wart-like lesions of various sizes. Neurofibromas are clearly are not infectious lesions from, and vice versa monkey poxIt is rare that it affects the palms and soles”, details the doctor.

For his part, Francisco Javier García, a dermatologist at the University Clinic of Navarra, condemns sharing a clinical picture of a person in social networks or the media, “and even less if it can be identified”. .

On the other hand, he has stressed that there is no parallel between monkeypox lesions and other skin diseases such as neurofibromatosis. In the latter, the lesions are skin-colored or slightly pigmented.

On the other hand, in the case of monkeypox, a contagious and contagious disease, they begin with papules with a pink base and an inflamed area in the contact area of ​​the contagion, which can spread to the second stage in the second stage. region. “Clinically they share no similarities,” he reiterates.

For his part, Dr Ignacio Blanco, national coordinator of the European Network of Reference Centers, recalls that “there are many other diseases that manifest themselves on the skin and that they are also not contagious Nor do they show lameness like psoriasis.”

“The lesions in neurofibromatosis do not appear acutely and, unfortunately, they do not disappear. Patients with neurofibromas live with these lesions and must suffer from people’s inquisitive forms. And many times they have explanations about the injuries. are forced to give in and that they are not contagious,” he lamented.

For this reason, they call on specialists and administrations to disseminate “clear and concise” information on the clinical manifestations of monkeypox and its differences with other dermatological diseases such as neurofibromatosis.

“For many people with neurofibromatosis type 1, the process of accepting the disease is long and difficult. Social reporting can reverse the process, and even more so if it is a false allegation, as is being done with monkeypox, “They warn.

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