“My daughter Nina (9 years old) will mark a historic milestone in Uruguay as the first patient with achondroplasia to undergo this treatment, which will change her life,” the musician wrote on his social media network.
Supervielle shared the publication of lawyer Juan Ceretta, professor of the Legal Clinic of the Faculty of Law of the University of the Republic (Udelar), about Nina’s case.
“In Uruguay we have the first case where the justice system condemned the State for supplying drugs to a 9-year-old girl, whose life could be changed. Currently, the sentence is subject to an appeal filed by Uruguayan State,” wrote the lawyer.
Specifically, it is the drug Voxzogo, a drug that allows children with achondroplasia, the most common form of dwarfism, to grow almost two centimeters a year. The drug costs approximately $12,000 per dose.
The State’s decision encouraged artists like Laura Canoura to express their support for Luciano Supervielle and his daughter Nina. “For Nina, for all children with achondroplasia!” he wrote on his profile on the social network Twitter.
Presented by the Ministry of Public Health (MSP). Crossed out that the modus operandi of the portfolio is to appeal all judgments that compel the provision of expensive drugs and no exceptions are made.
In the case of the drug Voxzogo, it was clarified that it was not registered in Uruguay and that the laboratory that produced it did not even submit an application for registration to the health authority, so the drug cannot be sold in the country. “It is not possible to give medicine that has not been registered,” it said.