Wednesday, January 19, 2022

YouTube star suffering from Benjamin Button disease dies at the age of 15

YouTuber Adalia Rose Williams, who had the early aging disorder known as Benjamin Button disease, has died at the age of 15. When she was three months old, she was diagnosed with Hutchinson-Gilford Progeria Syndrome.

Williams was “freed from this world” on January 12 at 7 pm, said a post on her social media accounts. It received over 805,000 reactions and over 158,000 comments on Facebook.

“She quietly got into it and went quietly, but her life was far from it. She touched millions and made the biggest impression of all who knew her. She’s no longer in pain and now she’s on her favorite music.” Dancing,” her family said in the post.

“I really wish this was not our reality but unfortunately it is. We want to say thank you to everyone who loved and supported her,” he said, mourning his loss while requesting privacy .

Thousands of users on Instagram, including designer Michael Costello, who designed Williams’ clothes for her 13th birthday in 2019, reacted to the news.

“My heart is broken. I received a message last night at 7 pm calling Adalia Rose Williams the house of God,” he wrote. “I am short of words and can’t stop crying. Adalia to everyone It was so special to meet her. She was an angel.”

He continued: “Despite being dealt with those cards, he had the most positive attitude and had such big dreams of helping everyone around him. I love you so much Adalia… words can’t describe How much you have changed my life. I will miss you dearly, friend, and I promise to cherish all the wonderful memories we have together.”

speaking with People Regarding their first meeting in December 2019, Costello told the magazine: “It was the sweetest. She was very sweet and very sweet. ,

“She’s so young that you immediately think she’s going to be like a kid, and you want to baby her. But I didn’t know she was 13, and she’s 13 years old any other way.” Like. She was a little bubbly!” The designer added.

Williams was three months old when she was first diagnosed with a rare genetic condition that accelerates aging and has an average life expectancy of 13 years, her mother Natalia Palante said. New Zealand Herald In a 2018 interview.

Along with premature aging, other symptoms include dwarfism, lack of body fat, and stiffness in muscles and joints.

“When Adalia was born, I think she was one month old and [the doctors] Was not happy with his development. It was one of the symptoms that came up first and then it was also that the skin on her abdomen was looking really tight and totally different,” Ms Palante had said.

The Texas teenager, who exceeded an average life expectancy of 13 years, started vlogging in 2012. She posted everything from her health updates to fashion and makeup tutorials, eventually amassing over 2.91 million subscribers and over 379,000 followers on YouTube. On Instagram.

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